Impact of tardive dyskinesia on the well-being and daily life of caregivers
The following article is part of the coverage of the Congress Psych 2021 conference, which was held October 29 to November 1, 2021 in San Antonio, Texas. The team at Psychiatry advisor will report on the latest news and research from leading experts in psychiatry. Check back for more on the Psych Congress 2021.
An online survey of caregivers for patients with tardive dyskinesia (TD) has been developed to assess the impact of care on psychological well-being, care tasks and daily activities, according to recent research presented at the Psych Congress 2021, which was held from October 29 to November. 1st 2021, in San Antonio, Texas.
The caregivers interviewed had to be unpaid for at least 3 months. Responses were rated according to the impact of TD on psychological well-being, caregiving tasks and daily activities from 1 (least impact) to 5 (most impact). The impact of TD on working life was assessed using the Work Productivity and Activity Impairment Questionnaire.
Caregivers surveyed (N = 162) represented racial / ethnic diversity in the United States, although caregivers with higher education may have been over-represented (74.7% had a bachelor’s degree or above). About 56% of caregivers surveyed were caring for patients they identified as a parent or guardian. A total of 35.2% of caregivers reported that the patient had severe or very severe symptoms, while 69.7% reported that the patient was either “somewhat” or “very bothered” by their symptoms.
Of the caregivers surveyed, 23.5% reported that the patient’s TD had a severe impact (defined as a score ≥4 out of ≥1 item in each domain) on well-being, caregiving tasks and daily activities. The mean (SD) scores were 2.5 (0.9) for psychological well-being, 2.1 (1.1) for tasks, and 2.7 (0.9) for daily activities. Regarding psychological well-being, 34.6% of caregivers said they often or always felt anxious or worried because of the patient’s TD; 29.0% said they felt sad or unhappy, 23.5% said they felt overwhelmed, 22.8% said they felt overloaded, and 21% said they felt stressed or tense. Salaried caregivers (n = 136, 84%) suffered an overall incapacity for work of 49.5%. These people reported missing 13.8% of their working time and reported an impairment 44.0% of the time at work.
The study’s investigators conclude: “Although most caregivers did not find it difficult to help patients with individual tasks, responses regarding the impact on their own activities and psychological well-being reflect a cumulative burden of support for patients with TD. These results underscore the importance of recognizing the differential impact of TD on caregivers.
Disclosure: This clinical trial was supported by Teva Pharmaceutical Industries. Please see the original reference for a full list of author disclosures.
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Jain R, Goldschmidt D, King S, Popadic L, Wilhelm A, Leo S. The burden on caregivers of tardive dyskinesia in the United States: An investigation of the impact on caregiving duties, psychological well-being and daily activities. Presented at: Congrès Psych 2021; October 29-November 1, 2021; San Antonio, Texas. Poster 43.